American Parkinson Disease Association, Inc

5368 Fredericksburg Rd, Suite 200
San Antonio, TX 78229-6108
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AAPSG Calendar, July
2005 - September 2005
All Support Group
Meetings are for PD Patients, their Caregivers, Family and Supportive Friends.
Alamo Area Parkinson's Support Group
Second Monday every
month, 1 PM
Sunset Ridge Church
of Christ, 95 Brees Boulevard
11 July – NO
MEETING
8 Aug –
NO MEETING
12 Sep – Regular meeting. General Discussions
10 Oct – NO MEETING. Church Closed
Young-Onset Parkinson's Support Group
Second Saturday
every month, 10 AM,
LOCATION TBA - An e-mail will be sent out when location
is determined. Also, call Cayce Kovacs 1-830-634-7332 for the new meeting
location.
9 July – General Discussions –NEW LOCATION
13 Aug – NO MEETING
10 Sep – General
Discussions
DBS Support Group “Live Wires”
Fourth Saturday
every month, 10 AM - Location varies; call Sandra Farris, 830-257-3811 sandyfar@omniglobal.net or Judy
Hoopman 830-997-7705 ralanh@ktc.com for current location.
PD Support Group of Lower Rio Grande Valley
Meets Third Tuesday
in Sept–Nov, & Jan-May. 2:30
PM, Golden Palms Retirement Center,
2101 Treasure Hills
Blvd, Harlingen, TX.
For more
information call Pauline and Bill Frink at
956-421-3360, or
e-mail mrspgfrink@rgv.rr.com
PD Support Group Poteet, Texas
Meets Second
Saturday every month,
11 AM – 1 PM.
Poteet Grange Hall - Bring a covered dish. For more info call
830-276-4824.

American
Parkinson's Disease Association, Inc
Alamo Area Parkinson Support Groups
5368 Fredericksburg Rd, Suite 200, San Antonio, Texas 78229-6108
Phone 210-344-8828, www.aapsg.org
APDA Information & Referral Center, Dr Eric Pappert Medical Director
Phone 210-567-6688
Quarterly Newsletter, July 2005
Editor: Dianne Johnson Publishers: Carla & Doak Walker
Local News
Executive Board, 2002-2004
President Fred Dyas
Vice President Rob Rodriguez
Secretary Carol Bertsch
Treasurer Joan Duval
At-Large Members
Cliff Hall Melinda Rodriguez Sandra Ganske Amelia Nieto-Duval Carolyn Deel Brad Sledge You may leave a message for any AAPSG
Officer or Board Member at 210-344-8828.
NOTICE NOTICE NOTICE
Young-On-Set Meeting Location
Change
The meeting
location for the Young-On-Set group, which meets on the 2nd Sat of
every month, is being changed. An e-mail will be sent out when location is
determined. Also call Cayce Kovacs at 1-830-634-7332 for the new location.
Symposium
The symposium was a
great success. A special thank you goes to all the vendors who gave us there
support. Also, thank you to Dr Pappert,
Dr Silvers, Dr Yankov, Susan Imke, RN and Christine Hunter, RN. Their lectures were very informative and
hopefully everyone took home a message to "keep positive, eat properly and
exercise!" Thank you to Cacye
Kovacs for pinch hitting for Fred Dyas.
Also, Cayce, Joan Duval and Kim Johnson-Vineyard who took care of the
registration table, thank you all.
Please let us know how well we did with the symposium and what changes
need to be made for next year. Have a
great summer!
POP Center
The Parkinson’s
Outreach Program offers many FREE opportunities for the PD Patient, such as
Yoga-Tai Chi classes, voice screenings, and driving evaluations to name a few.
Give them a call to see what they can do for you. 210-349-0096 or call toll
free 1-877-362-0126.
PLEASE NOTIFY US IF YOUR LOCAL ADDRESS OR E-MAIL ADDRESS CHANGES
Doak Walker shalom6@peoplepc.com , 210-674-3013, 7650 Hwy 90W #40, San Antonio, TX 78227-4059.
Our Web Site www.aapsg.org

developing
creativity
The AAPSG web site development and hosting is
donated by The James Company.
The James Company
was founded with the desire to develop
creative solutions for business needs. From beginning to end, The James Company
combines a passion for technology with an eye for creativity to bring you
innovative and customized solutions.
The James Company services include:
• web site
design/development
• web site hosting
• custom programming/e-commerce
• small business
consulting/solutions
Please visit our web site at: www.thejamescompany.com
This newsletter is provided
for informational purposes only. The material should not be used for treatment
purposes without discussing it with your Doctor. Products, businesses,
services, or websites are not endorsed by APDA, or AAPSG.
AAPSG Quarterly Newsletter, July 2005
Parkinson’s Prayer of Promise
Life used to be easy... ahhh
what we used
to take for granted!
How could we ever know the
struggles we
would be handed?
Simple efforts... threading
needles, walking,
tying shoelaces;
To steadying balance, tremors,
staring of
our own faces?
With each rise and fall,
never-ending fears,
We learn to conquer burdens
with
determination and tears!
This prayer is for our heroes
who have tried
their best to see
That God has his reasons, we
unselfishly
don't ask "why ME"?
And know there WILL come a
joyous day in
our lifetime for all to see,
A magical moment, a MIRACLE!
CURE!
for the heroes you and me!
Amy Marie Cannon, Diagnosed
with PD November 2001, age 43, Copyright ©2005 Amy Marie Cannon
What to Tell Your Children
Rasheda Ali watched
PD hit a mountain of a man she calls Dad. A nation watched, too, as Muhammad
Ali's shaking and slurred speech became more noticeable. He was in his 40s; she
wasn't yet a teenager. At first Dad just seemed a little older and a little
slower. Rasheda read voraciously, and quizzed neurologists for years. But it
wasn't until her own sons began asking questions about their grandfather that
Rasheda sought a way to explain PD so children could understand. "I read
about neurons and how they weren't producing the dopamine that's needed to send
signals to the brain," she said. "You're studying a really complicated
illness and an illness that there is no cure for, so what do you tell a
4-year-old?"
When searches at
libraries and bookstores netted nothing, she decided to write her own book. I'll Hold Your Hand So You Won't Fall:
A Child's Guide to Parkinson's Disease, is written for adults to read
to children. "I knew I wasn't the only person who was stumped when their
children started asking questions, like "Why is Poppy shaking," said
the young mother. The Merit-published short story has multicultural
illustrations and
kid-friendly chapters titled "Tremors," "Genetics,"
"Shuffle Walk," "Slurred Speech," "Depression,"
"How You Can Make a
Difference"
and the like. It identifies 14 PD symptoms and offers questions and ways to
discuss the topics with children who might be fearful. Cerise A. Valenzuela, Daily Breeze
Patients' Stories Needed for PD Research
Researchers hoping to compile information about PD say patients' own stories could hold
the key to a cure. "Don't Be Silent: Tell Us Your Story" is the first nationwide effort to learn more about PD directly from people who have the disorder. The first-person accounts are being compiled by the Muhammad Ali Parkinson Research Center. Some doctors believe PD is caused by a genetic predisposition, coupled with environmental factors that have not yet been identified.
Survey participants will be asked to complete a confidential, online survey that takes less than an hour to complete. Results will be entered
in the PD Registry, a project under the direction of the Barrow Neurological Institute at St. Joseph's Hospital and Med Center in Phoenix, AZ. Responses will be kept private. The data will be used in summary form only when it appears in scientific publications. Eventually, the survey data will be made available to doctors and researchers who are looking for a cure or developing techniques to better manage the disease.
To achieve its goals, the center hopes to have 20,000 PD patients fill out the survey. It is available online at www.parkinsonregistry.com. Patients without access to a computer can request a printed copy of the survey, along with a postage-paid envelope to return the results, by calling 877-287-7122. The Tribune-Review
DBS – Are You a Candidate
Deep Brain Stimulation (DBS) is one of the most significant advances in the treatment for PD. The ideal candidate for DBS surgery is a levodopa responsive patient who has motor fluctuations with disabling PD symptoms of slowness and/or tremor when medication has ceased to work and
has disabling dyskinesias when on medication. Patients should have received maximal
AAPSG Quarterly Newsletter, July 2005
medication therapy including multiple medication trials.
The effect of the surgery is predicted by the peak effect of levodopa. Levodopa refractory problems such as speech problems or balance problems are not improved with surgery. This surgery is not appropriate for someone who has been recently diagnosed with PD or for someone who continues to have symptoms adequately control- led with medications.
Prior to deciding whether a person is appropriate for DBS, the individual must complete neuro- psychological testing. If there are cognitive difficulties or any signs of dementia, the person would most likely not be appropriate for surgery.
Rajeev Kumar, MD CNI - Parkinsonian People 2004
Although DBS seems
to unscramble the brain’s movement signals to the rest of the body relieving
the shaking, weakness and sometimes partial paralysis caused by PD, some people
get relief even before the actual stimulation occurs. In experiments with
baboons, researchers have found that using mild electricity to stimulate the
surface of the brain also appears to improve symptoms without causing side
effects. HAPS
Happenings
Reasons for Unsatisfactory Outcomes for DBS Surgery
A study of follow-up care for patients with unsatisfactory outcomes from DBS surgery offers insights into the reasons for problems. The study will appear in the Archives of Neurology, August 05, JAMA/Archives.
Since the FDA approved DBS for the treatment of PD there has been a surge in the number of centers offering this procedure. There is no consensus regarding appropriate screening procedures, necessary training, or guidelines for the management of complications. Dr. Michael Okun, Univ of FL and colleagues evaluated 41 patients over a 2 year period who complained of unsatisfactory results from DBS surgery performed elsewhere. Each patient was evaluated by a movement disorders neurologist; medical records were reviewed; and the DBS devices were examined and properly
programmed. The researchers found problems with screening for surgery. Five patients (12 percent) had disorders that would not be expected to respond to DBS surgery. Nineteen patients (46%) had unsatisfactory placements of electrodes and 3 patients' devices had failed due to end of battery life. There were also problems with programming the DBS device and with medication adjustment. Thirty (73 %) of the patients required medication changes. Three patients improved markedly from medications alone, one from programming alone, and 17 after a combination of programming and medication changes. As evidenced, surgery does not replace appropriate medical management.
Twenty-one (51 %) of the 41 DBS failures in the study were successfully salvaged. Many, however, had persistently poor outcomes despite the interventions. This study provides insight into the common reasons for 'DBS failures'. As the prevalence of DBS therapy increases, implanting centers are becoming more experienced. It is hoped that this experience, along with ongoing efforts to educate DBS practitioners regarding effective practices, will result in improvement in the outcomes of DBS surgery."
John Pastor, JAMA, 352-392-3845
Do Not Be Fooled by “Cures”
There are people out there that will take advantage of our desire to be cured. The blood brain barrier (BBB) is a physical structure that filters the flow of fluid/chemicals from the 'outside world' to the brain. It is one of the body's protections against toxic substances, infections that want to enter the brain. Only some medications can get through the BBB to act on
the brain. For example, most, if not all, of the nerve growth factors and stem cells do not cross the BBB and therefore will have to be implanted directly into the brain to work. Thus, be very careful about “cures” such as growth factors, or stem cells in the injectable form or other items
being sold on the internet from other countries. Don’t try any “cure” on your own without checking with your doctor first.
Hubert
H. Fernandez, NPF.
AAPSG Quarterly
Newsletter, July 2005
Before the Hospital
Post operative confusion and slower recovery of PD motor symptoms are not uncommon in PD patients. Drs and nurses are not used to taking
care of the special needs of the PD patient. They do not intentionally want to provide poor care; we just don’t fit into their normal routine of care. I recommend you get several copies of "Hospitalization of the PD Patient” by Joseph Friedman, MD, a leaflet produced by the American Parkinson Disease Association. Give a copy to the surgeon, the admitting physician and all the nurses so that they are aware of the potential changes that may occur during and after surgery. Request copies on
www.apdaparkinson.org or call 1-800-223-2732
Being an Effective
Advocate
Dr Byock at Dartmouth Hitchcock Med Ctr says “You have to be prepared,
polite, and persistent.” His advice to those who are dealing with a chronic
illness or disability is “Do research about the condition with which you are
dealing. Use the resources that are available to you. Be smart shoppers in the
healthcare marketplace. “
Being a smart shopper means knowing when to keep looking for help.
Whenever there is a doubt, get a second opinion. This includes everything from
medical advice to researching hospitals, home health agencies and hospice
organizations. Don’t be afraid to ask questions.
- Find the primary doctor to go
to for questions or problems whenever there are several specialists treating a
person. Talk about what to do after hours or on weekends if a serious problem
develops.
- Bring written questions to the
doctor’s visit. If the doctor leaves the room before all of your questions are
answered, stay put and politely let someone know you still need more
information.
Families need to advocate for their loved ones.
Important innovations can be found at medical centers, but you must be
really effective as a
consumer to get access to these innovations. Whether dealing with pain
or any other aspect of a loved one’s chronic illness or disability when the
person’s basic needs aren’t being met, demand to talk to those who are in a
position to help. Take Care, 2005
Hospital Compare
- A quality tool for adults that provides information on how well the hospitals
in your area care for their adult patients with certain medical conditions.
This information will help you compare the quality of care hospitals provide.
Hospital Compare was created through the efforts of the Dept of Health and
Human Services, Centers for Medicare and Medicaid Services (CMS) and organizations
that represent hospitals, doctors, employers, accrediting organizations, other
Federal agencies and the public. Go to www.hospitalcompare.hhs.gov
PD Resources
Murray Charters has painstakingly compiled a listing of PD resources that are available on the Internet. He has 35 categories in all, covering every imaginable aspect of PD concerns. This is a quick-find reference tool when you need PD
info. Those of you who have slower downloading can choose the text-only version:
http://www.geocities.com/murraycharters/txt_only/index_jp
The spiffier version is at:
http://www.geocities.com/murraycharters/index_mc.html
American Academy of Home Care Physicians Find a healthcare professional in this area
who makes house calls or access a variety of educational articles and links.
Web site: www.aahcp.org , Phone:410-676-7966 PO Box
1037, Edgewood, MD 21040-0337
American Academy of Family Physicians -
This
patient-friendly Web site contains valuable information on health topics from A
to Z, as well as health tools and tips for healthy living.
Web site: www.familydoctor.org
11400 Tomahawk Creek
Pkwy, Leawood,
KS 66211-2672
APDA Worldwide Web Site -
National Parkinson Foundation –
World Parkinson Disease Association Web Site
– www.wpda.org
AAPSG Quarterly Newsletter, July 2005
Falling
1. Most PD patients who fall do not wear helmets even though they should. Why risk hurting yourself for vanity. If you are one of the smart ones who will wear a helmet, the best place to ask about one is a center for Epilepsy (Epilepsy Foundation of Central & South Texas 210-653-5353). They are the ones who routinely use
helmets as patients can drop unexpectedly, but a bicycle or climbing helmet will also work.
2. PD medications do
little to help with the problem of instability that often leads to falls and
even to a fear of walking. German researchers found they could help by showing
patients the
actual position of their center of gravity on a computer screen. First,
they analyzed the person’s posture and gait and showed how adjusting their
steps could compensate for their unsteadiness. Then, the physiotherapist pushed
or pulled the person to the back or side, to which he or she responded by
taking a counter- balancing step. Insufficient steps were corrected.
The overall goal was for the patient to maintain stability after the
pushes by taking large compensatory steps. The study found step length
increased, walking speed improved and self-rated mobility scores increased. The
improvements lasted 2 months. HAPS Happenings
Service Dogs
Several people have
asked about PD service/ helping dogs. One of the providers of dogs is The Gift
of Sunshine, 1940 Stonesthrow Rd, Bethlehem, PA 18015. Call 610-554-8725 or
e-mail thegiftofsunshine@earthlink.net
Stem Cell Information
1. The official
National Institutes of Health resource for stem cell research is
http://stemcells.nih.gov/info/faqs.asp
2. The prospect of
using stem cells to treat PD is one step closer after Israeli scientists
announced implanting human stem cells into the brains of rats which reduced the
diseases’ debilitating symptoms. According to Dr. Binyamin Reubinoff of the
Hadassah Embryonic Stem Cell Research Center at Jerusalem’s Hadassah Med Ctr,
the research represents the first demonstration that human stem cells can
replace damaged neurons
in an animal model.
The study also showed that the neural cells did not multiply out of control.
This was important because in a former clinical trial there was uncontrolled
growth resulting in uncontrollable involuntary movements.
HAPS NL,
Feb 2005
3. Brain Cells. Regenerative medicine scientists at the University of
Florida's McKnight Brain Institute have created a system in rodent models that
for the first time duplicates neurogenesis -- the process of generating new
brain cells -- in a dish.
In the Proceedings of the National Academy of Sciences, researchers
describe a cell culture method that holds the promise of producing a limitless
supply of a person's own brain cells to potentially heal disorders such as PD.
If the discovery can translate to human applications, it will enhance
efforts aimed at finding ways to use large numbers of a person's own cells to
restore damaged brain function, partially because the technique produces cells
in far greater amounts than the body can on its own. In addition, the discovery
pinpoints the cell that is truly what people refer to when they say "stem
cell." Although the term is used frequently to describe immature cells
that are the building blocks of bones, skin, flesh and organs, the actual stem
cell, as it exists in the brain, has been enigmatic, according to Dennis
Steindler, Ph.D., executive director of the McKnight Brain Institute.
"We've isolated for the first time what appears to be the true
candidate stem cell," said Steindler. "There have been other
candidates, but in this case we used a special microscope that allows us to
watch living cells over long periods of time through a method called live-cell
microscopy, so we've actually witnessed the stem cell give rise to new neurons.
A little more than a decade ago, scientists came to realize the brain continues
to produce small amounts of new cells even in adulthood, overturning the belief
that people are born with a fixed amount of brain cells that must last them
throughout their lives.
"As far as regenerating parts of the brain that have degenerated,
such as in PD, the ability to regenerate the needed cell type and placing it in
the correct spot would have major impact," said
AAPSG Quarterly Newsletter, July 2005
Dr. Eric Holland, a neurosurgeon at Memorial Sloan-Kettering Cancer
Center in New York.
John
Pastor, jpastor@vpha.health.ufl.edu,
1-352-392-3845
Univ
of Florida
FREEDOM
Held captive as a butterfly,
wings torn and tattered as I
try
To beat my wings and fly once
more
strong and beautiful, as
before.
Free from bondage, at last to
soar,
to do with ease the daily
task,
to join the world with a joy
for life,
to grow old with grace
with a smile on
Sandra Farris, October 2001
Selegiline
At doses of
selegeline over 10 mg per day (and generally, it's thought to be 20 mg/day) one
must avoid high-tyramine foods such as aged cheeses
and meats, and red
wine, because there is a risk for hypertensive crisis. For PD, however, the
dose is usually 5-10 mg daily, and this is not thought to cause a problem.
However, if you have high blood pressure and use 5-10 mg selegeline daily, you
should discuss use of high-tyramine foods with a registered dietitian.
Kathrynne Holden, MS, RD, NPF
Do NOT take iron
or vitamins containing iron within 2 hours of taking Sinemet. NPF
Internet Diet Information
Diet & Recipe Analysis - Can compare intake
over time. Also has
alternative nutrition, diet news, and message boards. Free trial
Nutrient Search Tool - Finds foods with the highest or lowest
concentrations of specific nutrients. For example, you can use this tool to
generate a list of
low-carbohydrate foods, or to identify foods from a particular category that
are high in protein and low in fat.
Free http://www.nutritiondata.com/nutrient-search.html
Food Count - Large database; user's dietary intake can
be saved for 90 days, track nutrient intake over time - Fee-based, free trial
My Nutrition Analysis Tool - Can save foods frequently consumed for quick
recall and reentry into the system - Free
Information on Nutrition Facts of 10 popular fast-food restaurant chains
Diet Analysis - Fee-based
Diet & Physical Activity tracking - Free
Detailed Information on Nutrients - Your favorite foods, including brand
names - Free
Nutrient Data Laboratory - USDA Food database - Free
http://www.nal.usda.gov/fnic/foodcomp/
PD Progression
PD affects people
differently. Some will be incapacitated by tremors, others by their balance
problems. Others will die not knowing they have PD because it is so mild, most
will die WITH PD and not BECAUSE OF PD. The chances of dying from a heart
attack or cancer is MUCH higher than dying from PD complications. Yet, there
will be some, who will be devastated by the illness and will succumb to
complications. As a very, very rough guide, the first 5 years is almost always
good. The next 5 years will depend on how good you are as a patient and how
good your doctor is as well. The next 5 years, can be challenging for some. Hubert H. Fernandez, NPF
Fish – Health & Depression
Depression occurs
frequently among people with PD. Researchers have found that the omega- three
fatty acids found in fish oil appear to be linked to better mental health.
- Why would fish oil
make a difference? Our brains contain a large amount of fatty acids, including
omega-three. However, western diets have changed dramatically in the last
century -- we eat much more meat and far less fish -- and depression and other
mental disorders have risen a hundred-fold. It's possible that we're not
getting enough of the essential fatty acids we need for brain health.
Researchers have found that some people who begin eating fish, or even
AAPSG Quarterly
Newsletter, July 2005
consuming fish oil
capsules, have seen an improvement in feelings of depression.
- Eating fish may
also lower risk for heart disease, and help offset some of the pain of
rheumatoid arthritis. It's a good idea to eat fish two or three times a week.
- What about mercury
levels in fish?
Long-lived and
"predator" fish may contain methylmercury, which can harm the
developing nervous system of an unborn child, if eaten regularly. Women of
childbearing age and children under age six are advised to avoid shark,
swordfish, tilefish, king mackerel and fresh caught or frozen tuna steaks.
-Regarding canned
tuna, women of childbearing age can eat about one can per week (six ounces.) A
woman who weighs less than 135 pounds should eat less than one can of tuna per
week. Mercury may also harm the nervous systems in adults, although a
connection between mercury and PD has not been proven. For more information and
updates, see the
Environmental
Protection Agency site: http://www.epa.gov/waterscience/fish/advisory.html Kathrynne Holden, MS, RD, NPF
Drug Assistance
Are you
looking for a way to lower the cost of medications?
Pharmaceutical Research and Manufacturers of America (PhRMA)
has collaborated with a variety of organizations to provide a wonderful and
interactive Web site that acts as a gateway to patient assistance programs
nationwide. The National Foundation
Caregivers Association
(NFCA) is a member of this partnership, called the Partnership for Prescription
Assistance. The Web site is designed to help low-income, uninsured patients
get free or nearly free brand-name medicines. Its mission is “to increase
awareness of and enrollment in existing patient assistance programs for those
who may be eligible,” and to “offer a single point of access to more than 275
public and private patient assistance programs including more than 150
programs offered by pharmaceutical companies.” You can obtain information about
specific medications or look for particular programs in your state. This site
is an invaluable resource for family care-givers and healthcare
providers who are
looking to find ways to afford prescription medications. You can get info on
the Web at www.pparx.org or by phone at
888/4PP-ANOW. Real people answer the phone and have the knowledge and training
to help you identify programs and fill out forms. If your income is low and you
are uninsured, this is a resource you should check out. NFCA
Newsletter, Take Care, 2005
Drugs
1. The FDA recently
approved ApokynTM (an apomorphine hydrochloride injection given
under the skin) as an effective rescue treatment to use during “off’ episodes.
2. According to a clinical study published in the Jan 2005 issue of Clinical Therapeutics, more than twice as many PD patients prefer
ParcopaTM (carbidopa-levodopa orally disintegrating tablets) to conventional carbidopa-
levodopa tablets. The reason primarily influencing their
preference was more rapid access to medication to treat “off” times, less
interference with daily activities, convenience for nighttime dosing and the
feeling of being less conspicuous about using medication. Parcopa is a
Schwarz Pharma, Inc. formulation of carbidopa-levodopa that dissolves on the
tongue without water. APDA NL
Winter 05.
A $20 coupon is available for Parcopa at www.parcopa.com or call 1-877-727-2672.
3.Though there is no medication currently approved for the treatment of
dementia in people with PD, a study of more than 500 PD patients, found that a
drug currently being used to treat
Alzheimer’s (Exelon) was well tolerated and Parkinsonians and caregivers
reported a modest improvement in cognition. HAPS
Happenings, 2005
Comparison Shop
“Simply calling around, comparing prices between pharmacies, could save an average of 60%,” says Salvatore Cullari, Ph.D., an emeritus professor of psychology at Lebanon Valley College. The survey which compared medication costs from several different outlets found that “the lowest prices typically were at Costco and at online pharmacies,” said Dr. Cullari. “For the lowest price, check costs at a warehouse club’s pharmacy, a drugstore chain’s web site and your
AAPSG Quarterly Newsletter, July 2005
local pharmacy. For 100 - 25-mg tablets of Zoloft there was
a wide range of prices:
LOCATION PRICE
A local CVS drugstore $298
www.cvs.com
$264
www.costco.com $244
Canadian pharmacy
endorsed on the Wisconsin governor’s web site $90
Woman’s Day
Magazine Sept 2004
PD- Red Meat & Vitamin B2
In Oct 2003, Brazilian researchers published a study entitled: “High doses of riboflavin and the elimination of dietary red meat promote the recovery of some motor functions in PD patients.” It’s important to bear in mind that this information is based on one small study, and more studies are needed. Thirty-one subjects were enrolled, and only 19 remained for the
entire 6 months of the study. Although the results are encouraging, it cannot be stated that this plan will be helpful for everyone with PD.
Here are some reasons why the study is important:
1. All of the people originally enrolled in the study were found to be deficient in riboflavin (vitamin B2), despite the fact that their usual diets contained plenty of riboflavin for normal needs.
2. All of the patients who completed 6 months of treatment showed improvement in standing, walking and balance during the first 3 months following treatment.
3. After 2 weeks patients reported better sleep, better reasoning ability, and less depression.
- How was the study conducted? Thirty-one people, in all stages of PD, and taking various PD medications were initially enrolled in the study. Researchers questioned the patients about their dietary habits, and determined that their diets provided adequate riboflavin; also, that those with PD ate more red meat than subjects in a control group. Upon testing, however, they learned that all subjects had some degree of riboflavin deficiency. Because those with PD reported a higher intake of red meat, this was eliminated from their diet. The researchers then gave the subjects 30 mg of riboflavin, three times daily at 8-hour intervals, a total of 90 mg
per day. The dosages were spaced throughout the day because a high dose of riboflavin given
all at once is mostly excreted; whereas if given in smaller amounts throughout the day, absorption is increased.
Twelve people dropped out of the study; 19 remained for the full six months. Of those remaining in the study, most reported feeling better after about two to three weeks. Researchers measured their motor capacity each month and found that they showed significant improvement after three months; some continued to improve throughout the length of the study. Riboflavin status also rose to normal levels.
Will this diet cure Parkinson’s disease? No, this is not a cure for PD, and in fact, it isn’t known yet who, or how many, might benefit from this diet.
Ask your doctor if this diet could be right for you.
Foot Exercises
1. Toe raise,
toe point, toe curl. Hold each position for five seconds and repeat 10
times. This helps cramps and hammertoes as well.
2. Toe squeeze.
Place small corks between your toes and squeeze for five seconds. Repeat 10
times. This one is also good for hammertoes or toe cramps.
3. Marble pickup.
Place 20 marbles on the floor. Pick up one at a time with your toes and put
each marble in a small bowl. This is recommended for people who have pain in
the ball of the foot, toe cramps or hammertoes.
4. The golf ball
roll. Roll a golf ball under the ball of your foot for two minutes. This is
a great massage for the bottom of the foot and arch strain as well as cramps.
5. Big toe pulls.
Place a thick rubber band around both big toes and pull them away from each
other, toward the small toes. Hold for five seconds and repeat 10 times.
6. Toe pulls. Put a thick rubber band around all of your toes and spread them. Hold for five seconds and repeat 10 times.
HAPS Happenings
2004
Memorials
In
Memory of Thad Brannon, Jr
John & Judy
Reeves, James Shea Jr,
Glen &
Alfrieda Anderson
In
Memory of James T Crow
Martha West Drake,
Diana Braly,
Don & Sarah
Norton, Tom E Nelson Jr,
Jefferson Bank
Employees
In
Memory of Rosa Lee Doerfler
Mary & David
Riley, Mr & Mrs Bill Meier,
Ben & Krista
Moreno, Diamond Air
In
Memory of Peter Donato
Mr & Mrs
Joseph J Ange,
Elena & Joseph
Lombardo, Pamela Behrends, Richard & Judy Hoopman,
Ronald & Jeannette Donato,
Mr & Mrs
William Richard, Alan & Karen Frisa
In
Memory of Ron Duval
Renee Thompson,
Erma Lee Walker,
Darlene Spencer, Ike & Mercedes
Eisenhauer, James & Joy Eberwine, Greg Bucklin,
Dawn & Tommie Thompson, Cliff Hall,
Bill & Shirley Knothe, Glyn & Patsy
Stewart, Fred & Ruby Aldrich, Doug Purcell,
Ruben Martinez, Bob & Terri Purcell,
Robert &
MaryAnn Hermanson,
Dick & Judy
Hoopman, Johanna Reynolds,
Beth A. Walls, Dr & Mrs Dick Stribley,
Carol Bertsch,
Oliver & Becky Rickert,
Cathy Heffernan, Bertie Jones MD,
David & Dareen
Widmann, Colleen Edwards,
Mrs George
Wenglein, Cassidy Bucklin,
Carla & Doak Walker, Daphine Palmer,
Lou & Kaye
Kennedy, C F "Skip" Harrington
Howard &
Madeline Hyman,
In
Memory of Dick Fuller
Fannie Mae
Foundation
In
Memory of George Gardner
Anne Beere, Earl R
Ballinger & Family,
Prichard Hawkins
McFarland & Young LLP, Cindy Salter, Kathryn Althaber
In
Memory of Ted Greene
Theodore &
Margaret Meyers
In
Memory of Enrique Guillen
Braun Station
Elementary Faculty & Staff.
In
Memory of Linda Hall
Robert &
Therese Sentell
In
Memory of Irma Johnson
Sheryl Stauffer
In
Memory of Ophelia Lambrect
Gerad & Betty
Jo Blietz
In
Memory of Dorothy Lehr Legan
Greater San
Antonio Chamber of Commerce
In
Memory of Mike Lerma
Aurelia Lerma,
Javier & Julia Padilla
In
Memory of Max Lipscomb
Helen E Myers
In
Memory of Eris Mangrem
Pat Henderson,
Annie Mae Taylor, Sherry Ely, Joseph & Wynon Clark, Barbara Agostinelli,
Billie Hudson, Yarborough Management LLC,
Joel, Josh Smart
and Donna Abbott,
Wallace & Sandra Cox
In
Memory of Stephen Marquette
Sheryl Stauffer
In
Memory of Joe Rodriguez
Ruth Moorman and
Bob McVey
In
Memory of Mary Rogers
Barbara &
Ricks Wilson
In
Memory of Ernst Schaefer
Mr & Mrs John
Sobieski, Eunice Healton,
Dennis R. Hamlin,
Joe & Jackie Herring, Pam
Rogers, Claude & Margie Smith, Ervin & Velma Real, Mary Jo & Leonard Dylla, Raymond &
Malgorzata LeBlanc, Southwest Research Institute, Dept. of Sensor Systems &
NDE Technology, IHI Southwest Technologies,
Norma Reininger,
Mrs Jessie Baker,
Enomie Real, Betty
J. Melton, Joey McDonald
In
Memory of Earline Shaffer
R.E. & Dorothy Gault, Mrs Pat Shannon,
VC & Ruth
Russell, Dorothy Killough,
Joey & Adele
Peters
In
Memory of Gail Hall Swearingen
Barbara &
Ricks Wilson
In
Memory of Patsy Tate
Barbara &
Ricks Wilson
In
Memory of George Wenglein
Jean & Bernard
Harris, Linda & Lee Padove, Helen Himstreet, Maxine & Bernie Rose,
Mr & Mrs Walter Redding, Sue Fuller,
Margie & Sam
O'Krent, Nell Kothmann,
Mr & Mrs Tommy
Griggs, Margaret Russell,
Mr & Mrs Tom Woliver, Robin B Carter,
Edith Montgomery, Harold & Ana Faye
Bausch, Rod & Ilse Schall, Pat Dalton, Margaret Williams,
Ron & Joan
Duval, Betty Kinsel,
Dr & Mrs John
Knox, Dorothy & Alfred Adair, Paul Spitalink Consulting, Inc,
Mr & Mrs Daniel Howell, Ann Kuykendall,
Russ & Kathi
Vander Zee, Dr Milton & Anita
Lindner, Dr & Mrs Frank Sheperd,
Mr & Mrs
Humphrey Price
In
Memory of Bill Wise
Barbara &
Ricks Wilson